"Coping with Lymphedema is a valuable resource
for those who are suffering from lymphedema,
and its underlying message is very powerful:
arm yourself with knowledge and become an advocate for your own quality care. This book is
a highly recommended resource and has received an outstanding rating from the OncoLink
editorial team." Lora Miringoff, MS, PT, University of Pennsylvania Hospital
Occupational & Physical Therapy Department for OncoLink
- Book Reviews
"Finally, a book on lymphedema a subject
that far too many breast cancer patients hear little or nothing about in those critical
days just after being diagnosed and before surgery. Lymphedema is an ailment over which we
do have some control. With education and effort, we can save thousands of women who have
survived surgery, radiaion, and chemotherapy, the heartbreak of coping with this
debilitating condition. Coping with Lymphedema offers much needed information and furthers
this effort." From the book review by Josephine Miller for Breast Cancer Action of
"I was advised to read "Coping with
Lymphedema" its excellent, very clearly and simply presented. I must
have turned down the corners of about 50 different pages that I want to refer back to a
lot!" M. Hall, Brooksville, FL
How is Coping with Lymphedema
the ONLY book of its kind?
The one or two books that have been written about
are complicated medical texts that target physicians and NOT
real live patients and their lymphedema therapists.
In contrast, Coping
with Lymphedema is a patient-friendly, comprehensible
resource that addresses ALL aspects of the condition in terms that
therapists, and doctors will find immensely helpful and mercifully
What Is Lymphedema?
It is a condition - characterized by hugely swollen
arms and legs - that people experience when their lymph systems are damaged by lymph node
removal, radiation treatments, or trauma. Some lymphedema is congenital - kids get it,
too. So do teenagers.
Millions of people have this lifelong condition.
But, no one knows much about it because there is no cure, there are few doctors who
specialize in conditions of the lymph system, and there have been no books on the subject
- until Coping With
Can lymphedema be prevented? In some cases, yes! Can
it be managed? In most cases, yes! However, most people who suffer from the condition do
not know where to turn -- until now!
Coping with Lymphedema informs both doctors and patients of the
hundreds of certified therapists and facilities in the U.S. and Canada where effective
treatment is available, including their names, addresses, phone and
fax numbers, e-mail addresses, and web sites.
Coping With Lymphedema
answers these questions
and dozens of others.
What factors make a person
vulnerable to lymphedema?
How is lymphedema diagnosed, and why is it so often misdiagnosed?
How can hospitalized patients protect themselves against the onset of
What steps can a lymphedema patient take to avoid a flare-up of symptoms?
Why are some scientific experts rethinking staging, radiation, and
Can alternative health strategies ~ such as acupuncture, hypnosis, herbal
medicine, and meditation ~ help the lymphedema patient?
What should a person with lymphedema know about selecting the right doctor,
lymphedema therapist, garment fitter, and facility?
How can you protect yourself against the dangers of some modern lymphedema
What is a lymphedema "survival kit"?
What effect does lymphedema have on a sexual relationship?
How can patients fight their insurance companies for coverage of lymphedema
Why is lymphedema a political issue?
Where can lymphedema patients go for help and how can their doctors
assist them by recommending the hundreds of certified therapists and lymphedema facilities
that exist throughout the U.S. and Canada?
For more information about
National Lymphedema Network, Inc. (NLN)
Latham Square, 1611 Telegraph Avenue, Suite 1111,
Oakland, CA 94612-213178
Hotline: 800-541-3259 Direct: 510-208-3200 Fax: 510-208-3110
The National Lymphedema Network (NLN) is
an internationally recognized organization founded in 1988 by Saskia R.J. Thiadens, R.N. to provide education
and guidance to lymphedema patients, health care professionals and the general public by
disseminating information on the prevention and management of primary and secondary
Gillette Women's Cancer Connection
support, women's cancer support groups, and resources for women with
breast, ovarian, cervical, or gynecological cancer -- and their families, friends and
A complete source
and guide to cancer information compiled by Alexandra Andrews,
a survivor of Inflammatory Breast Cancer.
Lymphedema Awareness Foundation
e-Lymph Notes, an E-zine that focuses on Lymphedema
issues and concerns.
Circle of Hope Lymphedema Foundation
provides educational programs, public awareness, medical treatment, and
continued research for the disease known as Lymphedema.
Breast Cancer Book Store
Associated with Amazon.com and The
HealthBook Store, a comprehensive source for books on breast cancer -- that offers 20% to
40% off the cover price -- some of which are hard to find at your local bookstore.
"Tamoxifen and Breast
Cancer" - New and Important Book
You can buy the
book in your local bookstores, or call Yale University Press at 1-800-YUP-READ.
Breast Cancer Risk Calculator
chance of breast cancer based on personal risk factors.
rehabilitative exercise program specifically designed for recovery from various breast
cancer surgeries with or without reconstruction, and adjuvant cancer treatments.
Quality information on Lymphedema
certification, supplies, resources and information.
If you have trouble finding this
Consumer Sales at Avery/Penguin
Putnam Publishing: 1-800-788-6262